Tuesday, March 13, 2012

Here we grow

So, it's been more than a year since I posted. It's time to get back at it, as we are approaching a point in the Price family where friends and family may want to get more current updates. Before we get to that, however, first a Truman update.

Truman is now 5-and-a-half and in his first year of kindergarten. He is attending Moss Haven Elementary in its Preschool Program for Disabilities Kindergarten program this year and spending about half his day in mainstream kindergarten. After spending much of the first semester dealing with behaviorial issues, Truman has settled in well and is focused on all academic goals this semester. He will be fully mainstreamed next year, only qualifying for speech as a special service. Everyone is comfortable that there are no cognitive delays and that he is an extremely bright and capable boy ready for kindergarten. He loves school.

He still struggles with handwriting and other fine motor and sensory issues and is back in occupational therapy for those issues. Eating is still a major, major issue, and Truman to be very small for his age, weighing in somewhere around 33 pounds and measuring about 41 inches. Truman continues to be a very happy, energetic, and witty boy. He astounds us regularly with his perceptiveness, intelligence, and musical aptitude. He is into pretending, pirates, boats, Star Wars, trains, and cars. He had his first lesson on riding a bicycle yesterday. He is playing soccer and enjoys the kindergarten choir at church.

Now, for the Price family news. This family of three will be a family of four later this year. We are currently expecting our second son due July 29. We are hoping for a full-term baby, but our first goal is to make it to April 26, which is 26 weeks. I am currently 20 weeks, 2 days pregnant. The baby is measuring at 21 weeks, 3 days and weighing in at 1 pound. Considering Truman was big for his gestational age at birth, we know that every ounce counts.

It has been a long road getting this far. We learned that not only do I suffer from incompetent cervix that caused Truman's early delivery, I also have an autoimmune issue that causes miscarriages (but that doesn't have any negative effect on my non-pregnant body). So, after four miscarriages, this pregnancy involved significant intervention with a reproductive endocronologist before to ensure the healthiest possible start and has had huge intervention since becoming pregnant. I underwent five rounds of intravenous immune suppression infusions during the first trimester, had a cerclage procedure at 11 weeks to sew my cervix closed, and have weekly sonograms to check cervical length. I take daily blood thinner injections in my belly, which is standard protocol for anyone with recurrent pregnancy losses, as well as weekly progesterone injections given by the doctor to prevent contractions. I am already on modified bed rest due to fluctuations in my cervix and on many other precautions. So far, I am holding strong with the cervix in a safe zone in terms of length. My latest measurement was 3.8 centimeters. I am currently in the riskiest portion of my pregnancy. If I can make it to 26 weeks, the risk will decrease significantly.

Truman is very excited about becoming a big brother. Once he learned about three weeks ago that he was getting a baby brother, he has been telling everyone, asking lots of questions, and seems very interested in all the details about the pregnancy and preparing for his baby brother.

As we navigate through the riskiest portions of this pregnancy and count down each day to reaching full term, I thought it was an appropriate time to begin regular blog updates again.

Tuesday, September 7, 2010

A Few Trumanisms

"Mama, get out my face, please." (I dared come over and kiss him while he was watching a movie)

"Mama, you be so happy." (a regular phrase I hear on the phone when he calls to tell me about using the potty or getting a good school report)

Me: Truman, do you have dreams when you sleep?
T: Yes.
Me: What do you dream about?
T: Trains."

Mama, I getting bigger. I be as big as you tomorrow."

For those of you who know our pets, a common refrain at our house. "I love Flora. Flora is a nice girl. Tickles is not a nice cat."

And, when I don't respond immediately, he loudly calls for "Mama, Mama Kawa, Mama Kawa Price." And a first this weekend, "Mama Kawa Applebaumer Price."

Friday, August 13, 2010

A big first at our house!

What a wonderful call I got at mid-day today when Truman told me on the phone: "I poop on potty. Mama, you be so happy."

Monday, August 2, 2010

Update

Over the last five months since the last substantive post, we have lots of updates. I think the primary change is that I started a new job about the time of the last post--a new job which no longer requires me to work nights and weekends, so I'm not turning on the laptop at home very often. I've gone in-house at a company here in Dallas and am loving it. While that's great for all our lives, it means less time on the Internet at home.


In late February and early March, we all went to Quebec for a week for the wedding of Truman's Uncle Jeremy and new Aunt Cindy. We had a lot of fun playing with the whole family in the snow, and Truman was a great traveler for such a long trip. In addition to an "American" wedding ceremony and a traditional Chinese reception in Montreal, we went to a sugar shack, to Quebec City, and to the Ice Hotel outside of Quebec City. We also did some inner tubing, cross country skiing, and general playing in the snow.

In March, Truman also tried his hand in a soccer clinic, which was a collosal failure. Rather than encourage taking turns and learning to follow instructions which we had hoped for, Truman did everything in his power to not follow the rules. So, at the end of the second session, we determined that we would skip the next four and try again next year. Also in March, Truman's Gramma came and spent a week with us for spring break. That meant a trip to the zoo, the Arboretum, the children's museum, and the park. It also meant the first attempt at potty training, which had no success. March also brought yet another unexpected snow in Dallas on the first day of spring (at least according to the calendar). I think that one measured seven inches. With the 12.5 inch snow earlier in the spring and the trip to Canada, Truman was an old pro at snow play--as well as the owner of bright red snow boots (thanks, Iotis for the hand-me-down!).

In April, Truman had a pretty bad bout of strep throat that caused the loss of a full precious pound of weight and some setbacks in eating. That month, we also took a trip to Lubbock for Easter. This was the first year Truman seemed to understand hunting Easter eggs. However, he had a tendency to open whatever plastic eggs he found and simply empty the contents on the ground. Knowing he can't eat most candy, that meant lots of melty chocolate candy left on the lawn of Covenant Presbyterian Church in Lubbock. At the end of the month, we walked in the March for Babies again. Team Truman finished third in all of Dallas with more than $6,000 raised. Truman was also featured on one of the big towers during the walk.

In May, Truman finished his first year of the Preschool Program for Children with Disabilities. While his teachers were happy with progress toward his speech and occupational goals -- more on that later -- we all feel like his issues related to classroom behavior, focus, and sensory issues have made little to no progress and still have a long way to go. Truman has a lot of trouble related to rough play and staying on task. The teachers do not believe his aggression toward other children stems from a desire to be mean or hurtful. Rather, they believe (and we agree) that it is an issue of impulse control, as well as communication and sensory issues. Once again, the Sensory Integration Dysfunction proves a tough issue to deal with. However, his teachers think Truman is on track to start mainstream kindergarten at 6, which is the year he would have started had he been born on his due date. That means another year of PPCD preschool and then PPCD kindergarten before he moves into a mainstream classroom, or at least that's the plan. The progress he made this last year in all areas, but particularly speech, is such a credit to his teachers. Yes, we work hard at home and therapy, and Truman was ready and willing to learn, but his teachers and aides have been fabulous.

May also brought our second trip to the Baylor NICU reunion. We got to see Truman's primary nurse who had such a major part of our lives. Interestingly, this time, the reunion felt very distant from our time in NICU and brought no emotion with it. I think it was a lot more emotional for her than us.

This summer, Truman started swim lessons again, began a parent-child program at the Dallas Museum of Science & Nature, and attended his first Vacation Bible School. This year, he has moved up to parent-free swim lessons. He has had visits from both grandmothers, and we've spent a long weekend with each set of grandparents. There have lots of hours in the pool, hours of playing with trains and dinosaurs, and chocolate chip cookies. We also learned in a recent measurement that Truman is now 37 inches tall.

In huge news, in July, Truman graduated from occupational therapy after almost four years. He had been in OT since he as in NICU. He measured on the upper side of average in every category. He also graduated, very smoothly, to a toddler bed from his crib.

In overall progress, Truman is talking more and more all the time. In a year's time, he has gone from barely talking (it was just June 2009 when he really began speaking) to naming dinosaurs, and characters like Pinnochio, using articles and pronouns, and asking today whether the phrase on my shirt was "Fantasia 2000." He now sings songs like Twinkle, Twinkle Little Star and the ABC song, as well as singing the phrase "T Rex" to just about any tune. He knows his alphabet and counts (and not just rattling off numbers in order, but really counting on a one-to-one basis). He also has started writing the letter "T" when you ask him to write his name and started deductive reasoning by correctly comparing new things he learns to things he already knows. He has memorized the names of more dinosaurs than I knew existed. Over the last several weeks, he has started pretending ... a lot. It is so fun to witness, as well as to listen his personal narration to himself about all the things that are happening in his mind.

One of the most impressive things we've discovered about his cognition is his musical literacy. We were riding in the car one day listening to a piece of music that is also featured in Fantasia in the piece that depicts the Big Bang and the evolution, life, and extinction of dinosaurs. The entire time the music plays, Truman is narrating to me what happens in the movie. He is getting so excited that it's clear he is actually picturing the events as he hears the music. At one point, he is silent for a long period; Ben tells me that portion of the music is not featured in the movie. Then, Truman tells me about how the dinosaurs died. A few moments later, he tells me how the dinosaurs were looking for food. I asked him how they were looking for food if they had already died. Ben then told me that's because the movie plays the movements of the original piece out of order. That is so impressive to me (and clearly genetic) because no matter how long I studied, I could never do that.

Finally, today in huge news--after months of regularly taking Truman to sit on the potty, it became clear that Truman was clearly able to use the potty, but simply unwilling. So, we decided to implement the commando method on Truman and leave him pantsless beginning about noon today. Truman used the potty twice yesterday and seven times today. This was after two previous successes in about four months. We hope we are onto something. After almost four years of washing cloth diapers and lugging a diaper bag, we're getting tired of this. So, this is a champagne day in the Price household!!

Thursday, March 25, 2010

Need help meeting my Team Truman goal

I promise to do some more substantive updates this weekend, but in the interim, I am proud to announce that Team Truman has surpassed its overall team goal of $4000 for the March for Babies because outstanding team members have far surpassed their individual goals! I, however, am $161 short of my personal fundraising goal of $2500. Please help me meet my goal and help spur Team Truman on to even greater numbers. Donate at http://www.marchforbabies.org/kaltenbaumer. No donation is too small, and every dime goes toward critical March of Dimes programs like life-saving research for babies.

Monday, February 22, 2010

Team Truman Update

I've learned that Team Truman was the 7th highest fundraising family team in Dallas last year for the March of Dimes March for Babies, but drumroll please ... we're currently in first place for Dallas for 2010. Here's the Dallas Family Teams blog where you can see the stats: http://www.marchforbabiesfamilyteams.blogspot.com/.


If you still haven't had a chance to support Team Truman as a walker or a donor and you'd like to, here's the link to my page where you can do so: http://www.marchforbabies.org/kaltenbaumer

Sunday, February 21, 2010

His father's child

Earlier today, I was listening to Bon Jovi in the kitchen while I made lunch. Truman kept coming in and saying "Tru loves Mama" and pointing at the iPod. Turns out it was his effort to get me to turn off the iPod so that Daddy could turn back on the John Williams CD from earlier in the day.