Weight Check

Truman had a weight check yesterday. Over the last six weeks, he grew an average of five grams a day to reach 17 lbs, 5 ounces. Slow growing, but it's growing, which we've come to realize, is all we can ask for.

We discussed the feeding issues. Neither the pedi nor the nutritionist seems to have many suggestions other than keep trying and working at it. It's hard because as Dr. Suterwala said, the problems are probably a combination of texture sensory issues, Truman's personality and will, and our stress over growth. I don't think we've been able to convince anyone of the sensitivity of his gag reflex. Like last night, he fell asleep eating before bed. When we had to wake him up to change his diaper, he got so mad that his crying set off the gag reflux, and a monster vomit erupted and erupted and erupted. Once the vomiting starts, he has no control over it until everything that's in his belly is out of his belly.

We also got the go-ahead to completely lift the isolation FOREVER on April 15. Yippee!! Dr. Suterwala thinks being around other kids may help some with the eating and speech issues. He did caution us, however, to be careful of comparing Truman to other kids developmentally. We knew that and know that, but you know we won't be able to help ourselves.